Patient Advocacy | Ohio Life Sciences

American Heart Association

Scott Gray — Sun, 02 Jul 2023 16:06:01 +0000

The American Heart Association has grown from humble beginnings into the nation’s oldest and largest voluntary organization dedicated to fighting heart disease and stroke. A shared focus on cardiovascular health unites our more than 33 million volunteers and supporters as well as our more than 3,400 employees

American Red Cross Central & Southern Ohio

Scott Gray — Sun, 02 Jul 2023 16:06:09 +0000

The American Red Cross prevents and alleviates human suffering in the face of emergencies by mobilizing the power of volunteers and the generosity of donors.

American Red Cross Northern Ohio

Scott Gray — Sun, 02 Jul 2023 16:06:12 +0000

The American Red Cross prevents and alleviates human suffering in the face of emergencies by mobilizing the power of volunteers and the generosity of donors.

Batten Disease Support and Research Association (BDSRA)

Scott Gray — Sun, 02 Jul 2023 16:09:05 +0000

The Batten Disease Support and Research Association (BDSRA) is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action. Founded in 1987, by parents seeking to build a network for those diagnosed with Batten disease, BDSRA is now the largest support and research organization dedicated to Batten disease in North America. BDSRA believes that to effectively unravel the mysteries of Batten disease, the worlds of medical science, research, and families must work together toward a common goal: discover treatments and cures while assuring a better quality of life for those living with the disease.

Epilepsy Foundation Ohio

Scott Gray — Sun, 02 Jul 2023 16:18:47 +0000

Epilepsy Foundation Ohio exists to end epilepsy. That means increasing awareness and changing the conversation around epilepsy, improving and saving lives through care, advocacy, research and new therapies, and education, and mobilizing everyone to take action. We are part of a nationwide organization, providing community services, public education, federal and local advocacy, seizure first aid training and research funding into new treatments and therapies.

Ian Burkhart Foundation, The

Scott Gray — Sun, 02 Jul 2023 16:23:41 +0000

The Ian Burkhart Foundation was established to help other individuals with spinal cord injuries. From the initial trauma to transitioning home to continuing on with your life we are here for you. A spinal cord injury is devastating not just for the individual but the family as well. Let us help you with any questions you have about adjusting to the new normal of your life. Having a strong support system to be by your side every step of the way is the best method to ensure success in your rehabilitation.

LAM Foundation, The

Scott Gray — Sun, 02 Jul 2023 16:26:33 +0000

The LAM Foundation urgently seeks safe and effective treatments, and ultimately a cure, for lymphangioleiomyomatosis (LAM) through advocacy and the funding of promising research. We are dedicated to serving the scientific, medical and patient communities by offering information, resources and a worldwide network of hope and support. The LAM Foundation is the global leader in the fight against lymphangioleiomyomatosis (LAM). Founded in 1995 as a grass roots effort, The LAM Foundation has evolved into an organization that is described by the National Heart, Lung and Blood Institute (NHLBI) as “a model for voluntary health agencies.” Headquartered in Cincinnati, Ohio, The LAM Foundation provides support and education for women with LAM and their families, engages doctors and scientists to continue to learn more about the disease and raises funds for the continued study of LAM. The Foundation has raised and invested more than $25 million in research over the last 23 years, resulting in the fundamental understanding of the genetic cause of LAM which led to the first ever clinical treatment trial and ultimately an FDA approved treatment for the disease. More than 2,000 women with LAM have been identified to date but it’s suspected that there may be as many as 250,000 undiagnosed or misdiagnosed living with LAM. The LAM Foundation strives to provide hope for all women with LAM by providing a network of support and continued research to ultimately find a cure for LAM.

The Brain Injury Research Foundation

Gene Powell — Fri, 21 Jun 2024 15:10:05 +0000

The Brain Injury Research Foundation connects companies with leading researchers and academic institutions specializing in brain injury and neurological research. This provides access to a pool of knowledge, advanced technologies, and research facilities that may not be available in-house.

Akesis

Scott Gray — Sun, 02 Jul 2023 16:05:18 +0000

Formerly known as the Axios Foundation, Akesis was born in 2000 from the pioneering efforts of its founders in implementing one of the first antiretroviral (ARV) treatment programs in Africa. Over the last 20 years, we have worked with public and private sector stakeholders to strengthen health systems and access to healthcare in more than 35 countries around the world – expanding from HIV/AIDS to other critical public health areas including malaria, family planning, cancer and vaccines. In 2020, the Axios Foundation was renamed Akesis in celebration of its 20th anniversary and its renewed commitment to sustainable health system strengthening solutions. Today, Akesis continues to break new ground as it works to advance a new generation of responsive health system strengthening services in parts of the world where it is needed most.

Alzheimer’s Association

Scott Gray — Sun, 02 Jul 2023 16:05:49 +0000

Our mission is to eliminate Alzheimer’s disease and all other dementia through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.